Compression Suit

Cayden has always had some sensory issues. Some are physical touch, oral, and his ears seem to be really sensitive. Most kids when you hug them really tight, they get mad or grunt. Cayden will actually relax. He would prefer that if you are going to touch him that it be rough. He likes to wrestle and be given a tight squeeze instead of a pat on the back. Lately, some of these issues have gotten worse. Every time it is too loud, or he is nervous, he covers his ears with his arms or hands and cries. It makes it really hard to go places or have Jaken upset, because Cayden gets upset. Its like he is being overloaded. We have compared it to a cup full of water. His brain is full to the top, and so the littlest noise or touch can send the water spilling over the side of the cup.

So we have decided to try a compression suit. It is kind of like a Speedo suit. He really likes it! It gives him constant tight "hugging" pressure, so that hopefully he will relax and won't get overloaded so easily.

Poor kid is SO SKINNY! We put it on him in the morning, and he wears it until bed. In the picture he is trying to take it off because I told him we were getting jammies on, and then I remembered I wanted a picture. Indecisive mom... Hopefully this will help alleviate some of his problems and allow him to relax a little bit. If not, he is ready to scuba dive!

**On another note, our friends, Brady and Amanda Flamm, have a little girl, Amelia (Millie), who has been battling Leukemia for the past two years. She is 6. She has been going through treatments, and last week they thought she was finally finished. Only to find out on Monday that the Leukemia has returned. She will be going through some pretty intense treatment over the next few months, and her and her family could really use some extra prayers and positive thoughts. You can read more about Millie here.

At least he is healthy

We have good days and bad days, but we are so blessed that Cayden is a healthy, full of energy, little boy. It is when I see or hear about poor little kids, like this, who are living a life full of pain and with a slim chance of survival, that I have to remind myself this: AT LEAST HE IS HEALTHY.

A new best friend

He may not like to hug people, but he sure loves to hug fire hydrants!

Everytime we see a fire hydrant he has to stop and give it a hug. I wonder if he thinks it looks like open arms waiting for a hug, but it doesn't hug him back... That's his kind of hug!

A "HUG"

Tonight as we were getting the kids ready for bed, I let them watch cartoons on my bed for a bit. Cayden was sitting on the bed, so I laid down next to him. He came over and wanted to lean on my arm. Leaning for Cayden is his version of a hug. I can't touch him, or put my arms around him, but as long as he just leans against me things are fine.

Its amazing how much a "lean-to-hug" can brighten my day!

The Christmas season

**Disclaimer: This may seem like a debbie-downer post, but I have to vent about the bad days for my own therapy....

I had a really hard Christmas. Cayden had an okay Christmas (for Cayden), and the rest of the family had a great Christmas! Back-up a bit... We moved just after Thanksgiving, so the first thing we did in our new house was put up the tree! And that's it... I had no desire to set up any decorations, ornaments on the tree, I didn't even get out our stockings until the night before Christmas Eve when my daughter said she was worried about what Santa would do with the stuff for our stockings. Everyone kept telling me that we had just moved, and I have Cayden and Jaken to chase all day so I was probably tired. Nope, not the problem. I actually felt a little scrooge-ish. I was totally okay if the holiday passed, un-noticed. What the heck is wrong with me?? I love Christmas! Finally one night Chris and I went on a date, and I just broke down. I told him that as awful as it sounded, Cayden was causing my scrooge like feelings. I didn't want to get anything out, because my almost 3 year old understands just as much as an 18 month old. I didn't want to spend the whole month putting the tree skirt back, putting the stockings away, re-wrapping the presents under the tree, replacing all ornaments at the end of the season, and dealing with the never ending meltdowns in between. Stupid reasons, right?

I took our babysitter (my awesome sister, Kelsey) home, and talked to my mom for a while. After venting my frustrations, we came to the realization that it wasn't Cayden causing these feelings, it was me. And it was not frustration, or scrooge, or even laziness. It was grief. Plain and simple. I had been holding it all together for months now. Since his diagnosis this summer I have been the strong one. The one telling everyone around me that everything was totally okay when it wasn't. I didn't even see it happening to me. Let me make this part clear. My child DID NOT die. He is alive and for the most part healthy. So why the grief? My child did not die, but a part of me did, and the life I always pictured for him did. Things have had to be altered, and plans changed. It has been harder than I could imagine at times, yet so rewarding in others. To look into that sweet face and see a perfect son of our Heavenly Father. And he is here in OUR home!

I realized that night, that it is okay to grieve, and it is okay to vent and cry. I don't need to hold it all together. That is why we have such a great support system. Our family and friends have been fantastic! I just need to let it out more than once every 6-7 months.

Things are better now. The two days before Christmas were amazing. We had stockings hung, presents wrapped, and half-open, under the tree, and lots of time spent with great family and friends. The parties were overwhelming for Cayden. Most of the time he ended up on Chris' lap with his fingers plugging his ears, or off in another room while the other kids excitedly opened their gifts. He didn't care to open any gifts or look in his stocking. He got his Woody and Buzz Lightyear from Toy Story 3 and that was enough. (If only we could get him to put them down for longer than 5 seconds now...)

I'm glad I had a quick change of heart, and am openly talking about how I really feel. Christmas with Cayden will always be different, but simply amazing too as we have the Spirit so close in our home. Hopefully next year will be a bit smoother!

Where it begins...

This blog is to help me through the good days and the bad. Cayden was born a perfect little baby on March 29, 2009. He is our second child, and our first son. He was developing normally, maybe a little slower than our oldest, but everyone assured me that boys were slower than girls. Around a year old he was saying mama, dada, and baa for ball. Around 18 months he stopped talking and I noticed little quirky things about him that if I didn't put them all together they didn't seem out of place. After a few months of worrying, we decided to get him into speech therapy. A few months into that with little progress, I was talking with my mom one day, and the word Autism just came to me. I didn't even really know what that was, but decided to look into it. the odd thing was that I felt totally comfortable with that, and I just KNEW that is what my baby had. In June 2011, we met with a doctor, and Cayden was diagnosed with Autism. It has been a rough road, and many tears have been shed all around. I hope this blog can be an outlet for me, and also a help to others who may be going through a similar situation. Cayden is an awesome, extremely hard, loved little boy.